Neurology

Taylor had her 6 month appointment today. She has been going every 6 months since she was 15 months old! I was hopping he would release her to 1 yr, but no such luck. He said he wants her back in 6 months.

She has been complaining of hearing birds and bells for awhile now. He says what we suspected and that it is her aura of her seizures. He doesnt want to mess with her meds as her daytime seizures have been gone for over 2 yrs (aside from a suspected absence every once in a while). She still spasms and jerks throughout the night. Even at her highest dose the medication only helped a bit. Doesnt appear to affect her life during the day unless she has a bad night.

He is pleased with her progress!

I thought he was going to cry. He has been seeing Connor since Connor was 5 months old, and for the first time, Connor looked at him and said hi...unprompted. He was blown away!
=)

Her next appointment is Decemeber 31!

Urology

Taylor's urologist says she has a non neurogenic neurogenic bladder. He says it is a "software" problem and some connections just arent hitting. She has a thickened bladder wall, but no reasons for a neurogenic bladder. She also doesnt really fit the reasons why a kid would have a non-neurogenic neurogenic bladder either.

His suggestion was to get her a watch and set it every 4 hours and "tell" her to go to the bathroom. He wants to see her back in a yr for another renal/bladder ultrasound to make sure her kidney's are still ok and see where her bladder is.

In the 2 weeks since her appointment we have been able to get her to go about every 8-10 hours. She goes at least once at school. I need to get her watch ordered so she can get used to it. They are super cool watches. They vibrate instead of beep and they are waterproof so she can still swim with them on.

We are so glad there is nothing major structurally wrong in her kidney's.