Taylor's Seizures

When Taylor was fist diagnosed with Infantile Spasms, we tried Phenobarb. hated that medication! She, within a few months was having absence seizures as well. She once had an 8 min absence seizure. She has over the course of 5 years had every type of seizure imaginable. We have tried Topmax and Klonopin as well. We have had good success with Depakote. She began this at 2 yrs and that has given us the most control. The only downside is the tremors she gets. Most people will have a mild tremor from depakote, or it will only last a few minutes. Hers are constant and seem to get worse as time passes. There is a possibility it is onlt partly related to the meds. The only way to really know if take her off the meds. Her neuro refuses to "unleash the beast" He is happy that we have the control we do. She has spasms througout sleep, some are the normal sleep myoclonus, some are seizures.

She will be having a 24 hr VEEG and a repeat MRI. It has been 2 years since either were done. We were hoping to get ti done in August, but we may not. She is doing good at the moment, so we arent in a huge hurry.